Ways you can help

TBR1 syndrome is a rare genetic neurodevelopmental disorder. Because there are so few families worldwide, every volunteer makes a real difference. You don’t need to be a scientist to get involved—you just need a willingness to help build connection, understanding and hope.

• Support families by sharing experience, listening and moderating online spaces
• Help with translation, editing or design so resources reach more countries and languages
• Partner with clinicians and researchers to spread awareness of TBR1 genetic mutations
• Assist with fundraising, outreach or social media for TBR1 syndrome projects

After you submit this form, someone from the TBR1 syndrome team will contact you to explore the best way for you to contribute based on your skills, time and interests.