Newly Diagnosed Family Starter Guides
Creating clear, parent-friendly TBR1 syndrome and IDDAS guides so families receive more than just a genetic report.
- Goal: $15,000
- Raised: $6,000
active
TBR1 Family Support & Peer Connection
Hosting virtual meetups, private groups, and Q&A sessions so TBR1 caregivers never have to feel alone.
- Goal: $10,000
- Raised: $7,500
TBR1 Research Partnerships & Data Registry
Building bridges between families and scientists to share de-identified data and accelerate TBR1 gene discovery.
- Goal: $25,000
- Raised: $12,500
Therapy & Education Resource Hub
Curating evidence-informed resources on speech, OT, PT, autism supports, and schooling for TBR1-related needs.
- Goal: $18,000
- Raised: $5,400
Global Translation & Accessibility Project
Translating TBR1 syndrome materials so families in multiple countries can access information in their own language.
- Goal: $20,000
- Raised: $11,000
TBR1 Awareness & Advocacy Campaigns
Raising global awareness of TBR1-related neurodevelopmental disorders through events, digital media, and partnerships.
- Goal: $22,000
- Raised: $14,300
