This contact form is for families, clinicians, researchers and supporters who would like to connect about TBR1-related syndrome. We can help you find community support, share information about current knowledge, and point you toward useful resources.
Please remember that we cannot give personal medical advice, change treatment plans, or respond to emergencies. For urgent medical concerns, always contact your local health-care provider or emergency services.
TBR1 syndrome is a rare genetic neurodevelopmental condition. Our site is run by families and collaborators to share information and lived experiences.
Our community is global and online, connecting families, clinicians and researchers across many countries.
We reply as quickly as possible. Please contact your medical team directly for personal medical advice or urgent concerns.
