Support Our Work
Current TBR1 Initiatives
These initiatives help families access support, trusted information,
research opportunities, and global community connection.
Newly Diagnosed Family Starter Guides
Creating clear, parent-friendly TBR1 syndrome and IDDAS guides so families receive more than just a genetic report.
Raised: $6,000
Goal: $15,000
Support this initiative
Title Initiative
Test Desc
Raised: $3,000
Goal: $12,000
Support this initiative
TBR1 Family Support & Peer Connection
Hosting virtual meetups, private groups, and Q&A sessions so TBR1 caregivers never have to feel alone.
Raised: $7,500
Goal: $10,000
Support this initiative
