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Get in touch with the TBR1 community

This contact form is for families, clinicians, researchers, and supporters who would like to connect about TBR1-related syndrome.

We can help you find community support, share information about current knowledge, and point you toward useful resources.

Please remember that we cannot give personal medical advice, change treatment plans, or respond to emergencies. For urgent medical concerns, always contact your local healthcare provider or emergency services.