Family support · Medical insight · Education & therapies
A TBR1-related diagnosis often arrives with more questions than answers. We help families find trusted information on TBR1 syndrome and IDDAS, connect with experienced parents, and navigate medical, therapeutic, and educational options.
Our Work
Family support, education, research partnerships, and global accessibility.
Creating clear, parent-friendly TBR1 syndrome and IDDAS guides so families receive more than just a genetic report.
Test Desc
Hosting virtual meetups, private groups, and Q&A sessions so TBR1 caregivers never have to feel alone.
Global Community
Our community includes families from multiple countries, speaking different languages, and accessing different healthcare and education systems. By sharing stories, translating resources, and partnering across borders, we create a stronger foundation for every child and adult living with a TBR1-related neurodevelopmental disorder.
Every gift strengthens this rare community.
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Driven by lived experience, family advocacy, and scientific collaboration.
Founder & TBR1 parent
Join a growing global community of families, advocates, clinicians, and researchers.
Join the TBR1 CommunityUpdates
Updates from families, researchers, and advocates.
A dedicated online resource for families, researchers, clinicians, and advocates.
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